Leading through ownership of personal data, this is what you should know!

#innovation #data

Enabling or blocking? Sovereignty of personal data.

Within the digital world, individuals are mostly viewed as — potential — consumers (obviously already a high share) or patients (currently growing share). The data of individuals needs to comply to the regulations within the country or region where the data is collected, i.e., it needs to fit with privacy and security.

Companies are building views on individuals, based from the name, address, email etc, which have been provided through every registration to an online service. As well as online behaviour, e.g., through tracking cookies. These centralised views or centralised identities are stored within silo-based platforms. Neither personal data or individual behaviour are well portable. This means that your digital identity exists in many small pieces with several companies knowing different information about you. This also means that you have to create a unique password for every profile you make, which can be cumbersome, and many tend to use the same password more than once. All of this creates security risks, since your personal data is being stored and managed by many entities and because a password breach might give access to several of your accounts.

An attempt to address these issues is federated identities. Individual identities are managed in a company or government centralized system. The system then distributes the data from the individual to a digital service. Examples where this is in use is within banks, insurers, retail and health. A federated identity enables easier digital activities through a single-sign-on solution However, a federated identity is still silo-based, since it only can be used with web services that accept this solution.

“………That’s right, SSI sets data ownership at the individual level.”

A next generation of identity solutions that is currently being developed and taken into use is self-sovereign identities (SSI). This type of digital identity is a user-centric identity solution that allows you to be in control of your data and only share the strictly relevant information. An example would a situation where you need to prove that you are of age. With an SSI you can document that you are over 18, without disclosing your exact age. Or documenting that you have received a specific vaccine, without disclosing information about all the vaccines you have ever gotten or other sensitive health data. Other examples are sharing that you have graduated to your — future — employer, your medical record with a hospital and your bank account with a store. In your own personal vault if you like (also: a ‘holder’ or ‘wallet’), you own and manage your data. That’s right, SSI sets data ownership at the individual level. Data ownership would resolve a large topic, that often proofs to be a blocker for companies to fulfill their digital ambitions. From this vault you decide to which companies & organisation you want to share your personal data to be defined per specific purpose. For this purpose, personal data needs to be classified (e.g., in accordance with privacy & security regulations) which data is open for all, which is private and which is secure data. The vault provider needs to have good technical solutions (e.g., with verifiers and encryption), a sufficient governance regime and controls in place to support this.

SSI will mean that individuals need to understand what ownership comprises of, what potential risks are and what good practices are to share data. Data literacy should be extended from mostly companies to more individuals. And companies should prevent technical, legal, ethical, fairness and security pitfalls (see also: 10 principles for SSI), e.g, for transparency for systems & algorithms as well as data monetization.